Sarah-Jane Mee

British television presenter

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Jesy Nelson highlights awareness gap in rare condition diagnosis
science Jan 29, 2026, 3:48 PM
Jesy Nelson highlights awareness gap in rare condition diagnosis
  • Jesy Nelson revealed her twin daughters were diagnosed with SMA Type 1 after their symptoms were overlooked.
  • Her mother was pivotal in spotting the signs that led to the diagnosis, highlighting a gap in healthcare awareness.
  • Nelson is campaigning for improved screening practices for SMA in newborns to prevent late diagnosis.
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